How is dementia expressed at a later stage?

Dementia: advanced stageAt some point in dementia or Alzheimer's disease the initial symptoms (lack of drive, memory problems, confusion) go into a stage in which the person concerned increasingly requires help and support in everyday life.

Memory problems have increased and more serious problems can occur. Bills may no longer be paid, the stove can no longer be turned off and those affected can get lost outside their normal environment. How the increasing memory problems affect each other individually is so varied that it is practically unpredictable.

Dementia: Mood swings are typical

The personality also changes or gets lost more and more. Those affected usually feel very well that they can no longer cope in everyday life, and can respond to it with violent mood swings and depression. Even the language is increasingly lost, it is often incomprehensible.

Our 10 most important tips for the relatives

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For the relatives and friends these personal changes are often even more stressful than the diminishing memory. Because you suddenly get nothing back. One would like to help but may even face aggressive defenses. That hurts, even if one says so many times that it is a disease symptom.

Advanced dementia: hard time also for the caregivers

In this phase you have to learn that you will never be able to speak more (or only a few) with your counterpart than you used to. From the loving partner or relative or friend becomes increasingly a caregiver, and unfortunately often without a thank you or something similar get back.

What exactly happens and how fast it progresses is very different. But at some stage or another, at some stage or another, the question arises for relatives about the extent to which they are still capable of sufficient care and whether nursing care or care in a nursing home is necessary. As long as a home care (with caregiver) is possible, that is certainly the most desirable solution for dementia sufferers.

Author:Dr. med. Jörg Zorn

Do you have your own experiences or a different opinion? Then write a comment (please observe rules).
Comments (10)
My aunt suffering from dementia
10 Tuesday, July 17, 2018 at 5:45 pm
In 2012, dementia was diagnosed. Until 2015 I supported my aunt at home. Then it did not work and I took her home. We had 2,1 / 2 years still some nice days and moments. Even though the disease has been progressing steadily, we have always focused only on what was still feasible. Now it looks like my aunt is in final stage, and everything she has identified has been lost. She can no longer walk and no longer moves of her own accord. She has difficulty swallowing and only makes singing noises. She still recognizes me and always smiles at me in the morning. To see you like that is very bad. I hope she falls asleep peacefully soon.
Dementia with my father-in-law
9 Monday, March 19, 2018 at 18:12
I live in the Netherlands. My father-in-law is now in the old / nursing home since the end of December 2017. Yesterday was his 86th birthday.
I made him a cake and cake for the roommates.
The family consists of only four children and a grandson. My father-in-law wept yesterday, then - about half an hour later - he was very angry and yelled at me. I did not know how to handle it! Somehow I miss the love in this family to the father. You say: Ohh, my Pa, the poor one! But my feeling tells me it's not meant that way.
I always try to talk to him normally. My sister in law, as if he was stupid or a baby. He is absolutely not in my eyes. I do not know how I can teach her how to handle him normally.
It really kills me that he gets a visit but is left alone. We did not even eat cake together. I did that alone with my husband and father-in-law. My father-in-law is very confused and always wants to be with his parents.Tell me he was in places we do not know and says how bad it was there yesterday.
I think that the dementia is very advanced, although he is still good on foot. How can I help him? What can I do? He always wants to get away from there. Home to his parents.
I do not know how to help him.
I hope it was a bit understandable. I'm grateful for every tip!
LG - Bettina
Remedy for dementia / Alzheimer's
8 Friday, 01 December 2017 00:37
Adrian B.
My grandmother got Alzheimer's or got the diagnosis in 2006. Today she is 85 years old and lives in a nursing home. She has advanced dementia. My mother took very good care of her and gave her everything with love.
Unfortunately, she has been prescribed medication for over 3 years, which did not do her any good. Unfortunately, you can not stop Alzheimer's dementia, I know.
Could you mitigate or slow down dementia with drugs such as high-dose vitamin D, antioxidants like Opc, turmeric, Greek mountain tea or hemp tea or cbd oil? I'm afraid for my 64-year-old mother, who also went through a lot. Does anyone have experience with these substances?
All the best to all concerned
Dementia in the advanced stage
7 Thursday, July 07, 2016 at 12:15 pm
Sonja philippi
Yes, all I can emphasize, just as I experience it right now. I am used to the "subject" and as a nurse in the outpatient care dealing with dementia patients, but to experience it on your own spouse is another very different thing. I'm also a relative that is appalled, sad and sometimes angry and sometimes desperate. Soon I will also have to get help with the "care", so I can even take a breather. The worst thing for me is to lose the "partner" and instead have a man who is becoming more and more a "child".
6 Sunday, 06. September 2015 at 20:20
It would also be possible to have an interim solution - day care. It relieves you and you can leave your husband at home, as long as you can still do it and the apartment is suitable.
Another very good alternative is assisted living, where a small apartment (about 50-60sqm) is integrated directly into a home. So you could stay with your husband and take care at the same time. There are atrium houses of a citizens' initiative, which have built several plants in Germany, maybe one is in your area. They are affordable and offer not only personal freedom, but also everything you need to care for, including full board. Optionally you can book everything from lunch to the complete supply.
5 Sunday, September 06, 2015 at 20:00
This question is difficult to answer. There is no universal solution. At some point, the situation will arise that one comes in private environment to its limits, since the degree of confusion has increased sharply and everyday activities such as the toilet, the food only with support are possible.
Very often observed, the sleep / Wachrhytmus is no longer available. A 24 hour care is essential. From this point you need expert advice on how to afford it financially and you should honestly ask - can I still do it in the home environment without getting to my mental and physical limits.
No one is helped if he becomes ill himself out of sense of duty and in the end may even become aggressive towards the sufferer, because he can no longer cope with the degree of confusion and is helplessly overburdened with the whole situation. Professionally, I have even experienced where the patients were confined, or even tied to the chair, to prevent them from "running away". An act of helplessness. It only shows how difficult it might be to protect people with dementia, for example, in a central city dwelling, from themselves and others from them, as they can easily become a danger if they are left unattended at a busy street to run.
Meanwhile, there are very good homes, which are specially designed for the peculiarities of dementia. With enclosed grounds, small residential groups, instead of "storage rooms" and care offers with typical everyday contents-
Gardening, crafts, cooking, etc., so that residents feel they are needed and spend their day wisely. Homes that still work with an activation room, where the residents sit every day from morning to night and sprinkled with spasmodic program, because someone once believed you have to urge their gray cells, should be considered with caution.
Before you decide on a home, you should definitely have been there a few times without registration. Try to feel the atmosphere and get people involved in a conversation. Do not let it show that you want to get an impression.
You can also research the internet and ask acquaintances who may know more about it. Never rush to pick a home just because it's easy to get to. The notes are not meaningful. Nobody should be blinded by a ONE.
The important thing is to look closely at the inhabitants. Do you look relaxed? Are they mostly clean dressed, the hair cared for, the fingernails are for example a very good indication, just like the beard care in the men. Likewise the air quality. Attention, if there is always a fragrance in the air - hereby urine smell, etc. should be covered. How do the employees look rushed and stressed out? Are many working in a lethargic way? Beware - they may be shut down, etc.
There are many excellent homes with volunteers who really make a meaningful and nice climate for the residents, but also a lot of homes that are super equipped, but where there is a cold distant atmosphere. Look closely at how to deal with conspicuous behavior (screaming, constant restlessness)! Care is not the same care!
Dementia in early age
4 Sunday, July 26, 2015 at 10:47
Roswitha hoss
Who has experience with Alzheimer's dementia at the age of 58? My husband is diagnosed with Alzheimer's disease at the age of 58. He got 2 1 2 years medication for the disease. They have been discontinued 3 months ago, because they think they do not bring anything anymore. He once walked me, can barely talk because he lacks the words. Has become incontinence. In the evening he did not want to go to bed. So I slept poorly and was not rested in the morning.
Have now done it for 6 weeks in the short-term care, because I could not. I was done with my powers. I am fighting with myself, whether I should leave him there or get back home. I've been advised to leave him there because it does not get better, it gets worse.
Who has been in the same situation and can give me some advice?
Father with dementia
3 Tuesday, May 26, 2015 at 18:07
A relative
Dear family member,
I have great respect for having your father with you. That it is hard and nerve-wracking, I like to believe you. Unfortunately, as a caregiver, one does not have the possibilities of MDK, such as a nursing home. The MDK is only interested in what is documented, they really do not want to look. There are great reports, which is supposedly all done, unfortunately only on paper.
The truth is, especially at night, a nurse is on the way for three floors with about 15 to 20 residents per floor. Certainly not all are demented. The fact that a person does not create or can only do the most necessary, is well clear, and the excessive demands of the caregivers manifests itself in high sick leave, bad mood, excuses, denials to insults to the helpless residents.
I can only advise you, get a help home.
Greetings and a lot of strength Patience and love I wish you.
Hard time for the carers
2 Tuesday, May 26, 2015 at 5:57 pm
A relative
... I can only agree with the patients being cared for at home with a caregiver; in the nursing home there is far too little attention and the omission of food is totally neglected, as well as the body care. It's all under time pressure.
The nursing home operators drive the fat cars, stuff their bags of money, and the staff and residents suffer.
Only the government should free the family members, if they take advantage of an affordable foreign aid. In reality, that would be a win for everyone involved. For the people who offer their help in the care of the elderly, the money that they get on hand, a lot of value, they must and can take care of the caregiver more intense and thus more loving, because they have no time pressure and only one person have provided.
The one who is cared for is certainly less aggressive and depressed because time is left for attention. The relatives do not have to be annoyed if they, so that the parents are well, even take over a large part of the care in the nursing home, before all the teeth are rotten!
Father with dementia
1 Saturday, 18 April 2015 06:51
Sylvia Tews
I have had my father with me for 3 months, until then he lived alone. 3 months ago he had a Tia, and then it went downhill! He does not know where he lives, he needs help, he can not dress, wash and care alone.We get up to 6 times during the night, because he does not find the toilet, it's usually too late anyway !!! Sometimes he gets naughty, then he is very nice again, It's bad to see a loved one like that !! I'm scared of the day when I have to give it to the home.
Add to that the ignorance and impudence of the care fund. Care level 2 was rejected for the third time. The statement of the MDK: if my dad lives longer with me, he would also find the toilet alone at night !! Where do we live ??????????