How is dementia or terminal Alzheimer's disease?

End-stage sounds terrible, but unfortunately, dementia or Alzheimer's disease usually progresses, so over the years the mental powers are gradually diminishing. A late stage or end stage is when the dementia has progressed so far that memory and thinking are almost completely lost - and thereby the physical functions are significantly impaired, which can lead to death in the end.

Course individually very different

How fast that works and how it expresses itself in individual cases, is very different individually. It also depends on the type of dementia and the speed of its development. For example, vascular dementia caused by circulatory disorders in the brain is usually much slower and more moderate than Alzheimer's disease. But Alzheimer's too, there are very different courses - from a mental decline within 1-2 years to a slight progression over 10 years and more.

 Dementia or Alzheimer's in the terminal stage?

How long the illness process takes with his or her relatives, how fast it progresses or whether it even gets that far, is therefore hardly predictable in the initial stage.

Emotional perceptions often become recognizable even longer

How can a pronounced late-stage mental deterioration manifest itself? Mind you, we are really talking about the last and most extreme phase of the disease, which is often, but not always.

In extreme cases, the memory is then completely lost. The affected only recognize the closest relatives and confidants, someday then no one else. At least it seems that way, what actually happens inside of the dementia sufferer is, of course, also a guess. Many relatives (but not all) report that they are still very well perceived emotions until recently, so for example, a smile when the loved ones enter the room.


What is often the hardest to work with for partners, relatives and friends: Of those who are formerly ill, there is often hardly anything left to recognize in those who are ill at such a late stage. Everything that has been associated with one's beloved or loved one, which was "peculiar" to him or her, has then disappeared. This is difficult to accept, because with it the mutual exchange is ended forever. As a relative one remembers well how it used to be, what conversations there were and so on, and now there is only the body, a face that hardly reacts to you. If you then still perceive emotions, that is at least a small consolation.

Our 10 most important tips for the relatives

Continue reading...

However, in vascular dementia or moderate Alzheimer's, the transition to this phase is much slower and more akin to a steady, year-over-year progression. For the relatives this variant is therefore often easier to bear, even in the late phase, because it does not occur so quickly and radically.

Eventually, the physical forces will disappear

Around-the-clock care is needed at this late stage of the disease - usually in a nursing home or alternatively with a 24-hour nursing home.

The mental deterioration will eventually be followed by physical decline. Often it begins with the food intake that does not work anymore, an increasing immobility is added. The own drive goes out almost completely, which weakens body and defenses. Since those affected in the end can no longer chew properly, swallow and breathe, the physical condition is becoming increasingly frail. Often it eventually comes to pneumonia or other infections. If vital bodily functions are severely impaired, it will eventually kill.

Author: Dr. med. Jörg Zorn

Read also:
How do people with dementia or Alzheimer's die?

Do you have your own experiences or a different opinion? Then write a comment (please observe rules).
Comments (33)
Alzheimer's my mother
33 Friday, August 10, 2018 at 1:09 pm
Doris Tollgreve
My mother has had Alzheimer's for 10 years. Now she is only dawning to herself. When I shake her hand, she grabs her. I then stroke her face. She seems relaxed then.But inside I feel that she is slowly leaving. That creates me. Thanks for being able to write to you.
Dementia and gateway to transition dying
32 Wednesday, May 30, 2018 at 18:43
Elvira Heck
My mother is suffering from dementia and was unable to formulate sentences until a few weeks ago. Only fragments of their thoughts. Now, after her fall in the nursing home (femoral neck fracture and surgery) she talks complete sentences, which was not possible before. Although not logically comprehensible and confused. Is that the pre-stage of death and mind cleaning up life?
Frontotemporal dementia man
31 Friday, May 18, 2018 at 09:57
Monika Kasper
My husband is suffering from "frontotemporal dementia". Since this form of dementia occurs very rarely, it was discovered very late in my husband. Our neurologist treated my husband for "Alzheimer's dementia".
Only at a hospital stay then the correct diagnosis was made.
My husband also suffers from the following diseases:
High blood pressure, green and cataract, chronic sinusitis, a "small" stroke, herniated discs (in some places there is no bone mass), diabetes, renal cysts right and left, renal insufficiency and sertraline-induced epileptic seizures or muscle twitches and - as I said - to "frontotemporal dementia".
I ask you, what does such a person still have in terms of quality of life? My husband did not want to live like that. I have cared for him for over 10 years. Through this long period of nursing I am myself attacked health. I visit my husband almost every day and try to get some quality of life for him. So that he can still sit in a wheelchair, I have requested an adapted seat at the health insurance. After some fierce fighting, my husband finally got them after 7 months.
30 Wednesday, 04 April 2018 at 17:58
Birte Schmidt
My mother will be 88 years old this year. For 6 years she lives in a nursing home. Previously she was cared for at home for about 3 years.
Since her mother and sister also had dementia, our family noticed about 12 years ago that they are increasingly suffering from dementia.
In the meantime, she can not talk, go, eat alone. She no longer recognizes anyone. But, smiling at her, she smiles back. Everybody!
She clenches her hands together and has already lost many teeth. She regularly gets a pain patch for the cramped muscles. Otherwise, she gets no medication. Her heart is very good.
I am very afraid that it is hereditary in our family and I wish that my mother will soon be redeemed - because the home situation I find unbearable. My aunt lived in Sweden, because it is really quite, very different.
Does someone also know such frequent cases in the family? And also such a long course?
29 Friday, December 22, 2017 at 5:11 pm
With my wife, the deterioration came very quickly and completely unexpected for me. I took over the care of my wife myself 24 hours. For two years. At first only with disturbances of the night's sleep. She was very restless and even strong sleeping pills hardly helped, but it was bearable.
In the last four months began the rapid degradation of body and mind! She recognized me only sporadically and the food intake was heavier for her. First, the puree and after about two months, the so-called astronaut food. That was the beginning of the end!
One day I noticed how a "puddle of water" formed at her feet. After examining the foot, I found that the skin on the heel was simply seated and a decubitus had formed. My wife could only lie down and hardly move. The result: Another decubitus on the coccyx. Despite intensive care and cleaning by the nursing service, there was no improvement.
After pneumonia was added, she was hospitalized, where she died ten days later.
Discharge diagnosis of doctors: Septic shock in pneumonia right. Unfortunately, but no explanation why it came to this shock!
That's why I feel guilty now and wonder if I somehow made a mistake in nursing ?!
Adolescent form of Alzheimer's
28 Saturday, November 25, 2017 at 16:10
My mother died of Alzheimer's yesterday (67 years old). When she was 52, we received the diagnosis. At the time, 7-8 years were forecast as life expectancy. Now it was 15 years. 15 years of agony and cruelty. Heavy falls: broken cheekbone, broken shoulder, broken skull. Six years ago, she stopped talking and could not walk anymore.Then came the spasms and the tremor (hands clenched into a fist that could not be opened). Then came the "tooth grinding" (she has herself ground her teeth with her teeth to stumps). No more smile, no facial expressions anymore. For years.
Last week she was (apparently) infected with a cold. Dysphagia was added, mucus had to be sucked out of the throat and throat several times a day. She could no longer eat and drink. For that reason, she grew up in pain until she finally got morphine. Then the flat hackle breathing began and her feet went black (presumably her circulation was concentrated on the torso).
Yesterday in the early morning she died alone. Although I would like to be there so she does not have to be so scared. I sat at her bed for days - but she left alone. I am sad-hearted ... and happy. These torments were hard to bear for me, how did they first have been for my mother? This illness has taken everything: dignity, joy, friends, family. Only my husband and I will stand at her grave!
I envy all those who report that their sick relatives can still talk or something. or die quickly. I do not know a single case of Alzheimer's that has been as dramatic and miserable as my mother's. Once again, I can only think of one saying: every animal would have been saved long ago. The sick are pepped up until they die of course ... and my mother is dead (not dead). Our care and sickness system is inhuman and exclusively profit-oriented. And my mother was not the first victim of this system "horror without end". Forgive me that I could not help you anymore, Mamalina.
Vascular dementia
27 Wednesday, 01. November 2017 at 20:24
Breuer, Ruth
I lost my mother in September. The final stage was cruel. Eat nothing and can not swallow anymore. Death a salvation. It was just sad. I have to process this alone now. It's hard, but I wish I could do it.
Lewy dementia
26 Friday, October 27, 2017 at 21:14
My father has Lewy dementia and that's terrible for us. He is only afraid and has hallucinations. Everyone wants to kill him after his imagination or at the collar. He never wanted to live like that.
End stage Alzheimer's dementia
25 Wednesday, September 13, 2017 at 19:16
My dad died 2 days ago. He had Alzheimer's dementia. He had been in the nursing home since the end of June, where he was dismantling. He did not eat and drink anymore. He was losing weight. Could not run anymore. Was in bed shortly before his death. It was so sad to see him like that. But now, dear dad, you have made it. You have defeated this stupid disease.
Vascular dementia
24 Wednesday, June 21, 2017 at 18:46
N / A
My grandfather is in the final stage. It's just cruel. He weighs estimated only under 40kg, food and drink is not more. He can no longer speak.
Asleep only through the morphine patches. Due to restlessness and aggressiveness, he came to psychiatric hospital 2 months ago to calm down and then went downhill within a very short time. Now he is in the nursing home and is receiving palliative care.
23 Friday, May 26, 2017 at 9:25 pm
We cared for the father, he had dementia, it was a difficult walk, we were glad when it was over.
Evil for relatives
Dementia in the terminal stage
22 Friday, April 21, 2017 at 8:47 pm
My friend has dementia in the terminal stage. At the last examination no more 10 points. She gets lost in her own house and gets the toilet no longer alone. She still recognizes the relatives. How is this terrible disease going?
I still have many questions about this terrible disease. For example: How do I react to questions that I can not answer?
21 Monday, March 27, 2017 at 8:11 pm
Have lost my father from this terrible disease, the end is really cruel, no longer swallow, no more talk, no more move, the end is there a salvation.
The course is individual - also concerning the recognition of relatives and the language
20 Sunday, February 26, 2017 at 19:18
I would like to join in the comments that write that even in the final stage, recognition is possible.
This was the case with my dad and we were so immensely grateful for that. He recognized everyone and was also able to address us by name - even on request. Throughout his life, he was there for his family and most important to him and that remained until the end, as far as the illness allowed.
He was always happy when we visited him at home, where he was cared for by our mother and he knew all of us to distinguish ourselves, spoke to us by name.
He was able to talk well and meaningfully and in full sentences, he stopped this when he was getting weaker, but on good days he could talk quite normally, if only general and commonplace.
Surely there are the other courses, which only mumble words, remember nothing and at best smile, if someone familiar is there. But there are others and you should not overlook that.
But it must also be supplemented that in the end he could not walk anymore, not even stand with help and could not even get out of bed.
In the hospital, so my experience, the Demente is no longer taken for full and treated the same way, especially by some doctors. Not all, this is not meant to be a flat rate, but some do not even think it necessary to talk to their relatives. If they do not take care of themselves, they will not be aware of what's going on with the sick, it's just going to do something and you'll learn about it afterwards.
The constant immobilization and that also during the day, with a restless, not at all aggressive patient, does not have to be either.
And one more thing: not everyone gets aggressive. My father never was.
There are also quiet, anxious people who rather retire. They realize that they have no control over themselves and can not do anything about it. How stressful that must be when you realize that the body does not obey you. My father also knew that in his advanced stage, pointing to his head and saying "it's not right up there".
Depending on the nature - and I think and would say from personal experience, here plays a role, as the person concerned was previously - express some their helplessness in aggressiveness, others in retreat.
So it was with my father, he was always calm and calmed down even before he finally fell asleep peacefully at the age of 84 after 13 years of dementia, the first of which was not noticeable to outsiders.
My experience with clinics and other providers is that only a fraction of them offer really specific offers for dementia, no matter what is on the beautiful website of the particular clinic or practice.
to Marie
19 Monday, October 31st, 2016 at 12:46 pm
Navigator editors
Hello Marie,
we can only partially understand your criticism. Of course we are not a forum. We are a medical website written by doctors. But we want to deliberately allow comments from readers, because of course we are not always right. What's wrong with that?
And to your mother: Of course, our answers can never do justice to every case. But the forms are far too different. And of course the mixed form of vascular dementia and Alzheimer's as in your mother naturally has its peculiarities.
And last but not least to the neuroleptics: These are also in our eyes often misapplied "immobilizer", the patient more harm than good.
Best regards
Your navigator team
Is this real help?
18 Sunday, October 30, 2016 at 18:55
Sorry, but your site is really no help. Not a real forum where you are prepared to read non medically qualified "soul effusions" and not a real medical side. My mother has been suffering from a mixed form of vascular dementia and Alzheimer's for 10 years. I can not confirm everything you write.
However, I agree with a comment: Neuroleptics make the situation worse! My mother, by the way, is just under 92. She recognizes us all very well, had a severe stroke in May, from which she has recovered well - thanks to dementia - and before she got neuroleptics, she could go wonderful again. That's why I'm taking these drugs off now.
To all: do not hand over common sense at the door to the hospital or the doctor's office, and above all: respect the dignity of the patient until the end. Also nonverbal utterances must be considered .....!
Husband vascular dementia
17 Tuesday, 04. October 2016 at 20:33
Irmgard aSchuler
died of pneumonia
my grandfather has Alzheimer's in the final stage
16 Monday, September 12, 2016 at 09:03
Six years ago we noticed that Opa (age 70) was wrong. Then we went to the doctor and he said grandpa has Alzheimer's ..
Two years later, he was bedridden from day to day. He barely recognized us. Few months ago he smiled at certain people he liked, but that too was over quickly. Another 2 years later his eyes are fixed ... can not speak anymore. Physically, he can not move. Extreme swallowing, coughing, denied food and drink ....
it is terrible how much he has to suffer and we can do nothing more ...
15 Sunday, 04. September 2016 at 22:04
the same symptoms of a disease as the side effects of neuroleptics in overdose !!!!
Dementia or Alzheimer's in the terminal stage
14 Tuesday, May 24, 2016 at 2:33 pm
Kugler Sigrid
I comment on the sad ending of my father, who had terminal lung cancer, when a delirium with dementia occurred simultaneously. Dementia alone leads to death. The point of conflict between me and a mental hospital was merely that I considered his delirium a symptom of his terminal stage of cancer, the clinic his dementia as the cause of my father's delirium.
The cancerous knots were probably all palpated and multiple, for the mental hospital but not cancer proof, but only suspected cancer, apparently a layman's error. I as a care had the responsibility for the old man and wavered for a long time, which was the main diagnosis. Only a general hospital could make the lung cancer diagnosis.
Hospitals that treat everything with specialist care do not exist, and in Germany a community-based psychiatry is lacking. It is too inflexible in this country to reinzuschieben a nervous on other stations so that a main diagnosis such as cancer could be treated first and the delirium after "home-maker" and not expertly.
I deeply regretted that at the death of my father.
I suffered for a long time and must apologize for my compulsory admission that relatives had refused to bring the father together to the nearest general hospital together, which I did not dare to do alone with him. His family doctor had the practice and the emergency physician at the weekend no doctor, he delegated his responsibility to a district mental hospital. And the dying old man did not take care of me, which I would have liked to do.
13 Saturday, April 23, 2016 at 12:13 pm
Reising Ursula
I can not confirm that either. My father was with dementia in the nursing home for 4 years. I was there every day and he was able to recognize and distinguish who visited him. He could not say that clearly, but he found a replacement for what he could not express anymore. I was e.g. those with the dog, my sister was there at the weekend, he knew that very well. My uncle came with the rollator, that was by car, another brother of his lived in a village outside, that was the one from the mountain. That is how he expressed himself.
After accepting his illness, we had a lot of fun together. You just have to take them as they are, and meet them in their world. The highest for him was when we went out with him from the nursing home to eat ice cream. He wanted to do that every day.
"those affected no longer recognize anybody"
12 Sunday, 06 March 2016 at 17:28
Sorry, but that's not true! I work for over 10 years with dementia and Alzheimer's patients. Love people are recognized. Patients may not be able to say who they are, but they do recognize family, relatives or close friends. Sometimes the patients are calmer, smile or have a different view. Patients come to rest or speak suddenly. Too bad that relatives have to read such sentences again and again. I can not confirm that.
Dear Marion Merkel
11 Wednesday, 09 December 2015 at 11:03
Herbert Weidner
It was the same with my mother, in the summer, in September she died. I sat down in this bad time and wrote down their lives. That helped me alot. Later, I even made a book out of it and published it on Amazon. Not everyone can write, but try it, it helps to cope and handle everything better.
Much strength wishes Herbert
final stage
10 Wednesday, 18 November 2015 09:29
Marion Merkel
My dad has been in the nursing home for 3 weeks now and day by day things are getting worse. Meanwhile, all motor is no longer available, he is bedridden, through the catheter has a urinary tract infection that can not be controlled by antibiotics, pressure ulcers, and since 2 days he can eat without coughing and strangulation nothing more, denied it now. ...
A gastric tube is not an option according to the directive ... That means saying goodbye in the most cruel way there is .... I wish all of you who are in a similar situation much strength (you Nanny)
Dementia of my mother
9 Tuesday, 03. November 2015 at 18:21
My mother is still fine.She was drugged, since the tantrums are gone, only when we came back from vacation, I got a shock, running is very very bad, busy is not more. Everything is only with instructions. Mum still recognizes me. How long can I keep it up ??? I can not get help from my brother.
Absolutely helpless
8 Saturday, October 24, 2015 at 22:20
Marion Merkel
I am desperate and helpless ... Three months ago my dad was not yet suffering from dementia, except for his gait disorder, which he has had for about 6 months, he was doing well according to his age ...
In the last 3 months, everything has come together ... As an absolute opponent of drugs and hospitals, we had to force-call him to the hospital ... he was in a delirium and has not rangelassen us ....
Current situation is, he still recognizes us, but then lives in another world, can not walk anymore and is incontinent ....
He is now in psychiatry for 5 weeks and should be there adjusted to medication ... Unfortunately I have the feeling that he is more calm than hired, because he reacts sometimes aggressive, if the caregivers want to wash him or want to change the diapers. .. and at night he is very restless, can that also come from the neuroleptics or is this exclusively the clinical picture?
Next week he will be moved to a nursing home, but today I was told that he has a flu with fever and he is feeling sick ... I can not even think straight and I'm just crying because I'm not Know what's right and what's wrong and how I can help him ....
It is hoped that the doctors know what they are doing, but I am doubtful, even after many comments, if treatment with neuroleptics will do more harm than good.
It hurts so much to see the loved one that one almost hopes that he will be redeemed ... I personally can hardly stand this pain ... Who can help or know an advice for me and for my father?
Dementia course
7 Thursday, 03. September 2015 at 23:24
In 2012, we received the diagnosis "Alzheimer's", the disease was in shanks that came faster and faster. From 2012, care could be carried out by a home nursing service. Regular exercise outside and social stimulation / contacts were very important. From 2014, a 24-hour care at home was required. In the final stages of dementia care in the nursing home was required.
Approximately Three years after the official diagnosis, my father was bedridden for three days and then died. He previously had pneumonia, which was treated with antibiotics, he was very frail due to the infection.
Alzheimer's in the terminal stage
6 Monday, August 10, 2015 at 15:50
We are in the final stage ...
Our grandmother has been in bed with Alzheimer's for five years. Communication is not possible. A few weeks ago she had pneumonia. The nursing home did not inform us in this regard (just a call on the phone). The home made sure she had antibiotics and an infusion - despite a living will. The chance that she could have died dignified, so she was not given. So the suffering continues and who has something of it? At least not. What you suffer and what we suffer with it is incredible and it does not interest you.
Alzheimer's disease - terminal stage
5 Thursday, July 30, 2015 at 06:43
Gabriele Neumann
Alzheimer's diagnosis is always terrible. However, there are now numerous approaches that can make the life of those affected - despite the disease - more liveable.
It is always important to mobilize the sufferer. Unfortunately, it is often the case that, with the diagnosis, the Alzheimer's patient is often perceived as confused, as a person who can no longer do anything. That's completely wrong. One should induce the patient to physical activities. This, of course, only as long as it is possible.
Promising results have been shown by the use of coconut oil. Obviously, the fats contained therein are likely to have a favorable effect on the disease.
Since I know that, I have replaced butter with coconut oil in my household.
I also find the findings that come up in the book "The Alzheimer's Lies" very interesting. Thus, the most favoring factors for Alzheimer's are: lack of exercise, poor diet, social isolation, lack of sleep.
If that's right, Alzheimer's will affect younger and younger people over the coming years.
Alzheimer's my mother - course
4 Tuesday, 09 June 2015 09:35
In the fall of 2013, the diagnosis was made due to a nudge we first thought was a stroke.Suddenly she could not see and barely speak - confusion.
Thereafter, the hospital was diagnosed and her eyesight and speech were unchanged.
The year before, she noticed that she often misplaced things or did not find familiar ways - that was only sometimes the case. At this time, she was 69 years old.
Her course went very quickly with the diagnosis.
In the first few months she was able to handle everyday life alone, after which support from a home help was needed.
1 year after the diagnosis, a 24-hour care at home was already announced. We had decided against a nursing home because my mother wanted to stay at home and in the illness any change, no matter how small, meant the next push!
The regular and loving contact with the family and close friends was always there and very important for them!
Phase 2 and Phase 3 were blurred and incredibly fast!
Very, very quickly my mother fell asleep 1.8 years after her diagnosis, at home and in the arms of the family!
She was bedridden, thank God, only 4 days! During this time, she could not eat and drink anymore and was in a pre-comatose state - then she just breathed .....
It is and was very sad, but it was released from a possible long ordeal!

It was not always easy to experience the phases and especially their effects - I was often desperate, burnt out, sad, totally exhausted, but I persevered and am grateful that I could accompany my mother

To ALL NURSING CAREERS: Stay in loving contact and I wish you strength and courage - YOU need it!
All the best!
3 Wednesday, May 13, 2015 at 07:15
Volker Dürk
I recently lost my dad! You can not imagine a cruel death!
Neuroleptics provoke the final phase
2 Saturday, 07 March 2015 at 11:41
Hildegard Beck
My husband was able to go alone in November last year, speak normally, eat alone, we were traveling a lot, had some spare time activities such as short day trips by bus, boat day tours, restaurant visits fun, slept at night, was not incontinent. He needed help with day-to-day activities such as grooming, getting dressed, shopping.
He was given prophylactic neuroleptics, an antidepressant, and a sleep aid at a routine appointment with the neurologist. As a result, he fell into a delirious state, developed nocturnal restlessness and became aggressive. Then he was hospitalized in Genrontophsychiatrie, where the dose of medication prescribed by the outpatient neurologist was rated as too high, My husband had come into a delirious state, they wanted to change the medication.
Due to the change of environment, my husband became even more restless, they gave him more and more psychotropic drugs, on day 2 on station he could not go alone, not eat, crawled across the floor at night, last he received 5 different psychotropic drugs (3 neuroleptics, 2 benzodiazepines ), declined more and more, slept mostly, due to lack of staff and lack of supervision of food intake, he took more and more. I brought home-cooked food from home, he fed me. Nevertheless, he lost weight to 55 kg.
I had to give him to a special nursing home for dementia patients at the urging of the doctors. I had him for 24 hours at home, where he could not be properly supplied by me because of significant fall risk. He slept 12 hours a night on the floor because he was too weak to lie down in bed and I was afraid he might fall out of it. I had to bring him back to sitting position on the bed with a neighbor the next morning.
Although I did not use the on-demand medication with Tavor, he was heavily sedated but approachable and responded. He enjoyed my home-cooked lunch and ate this with appetite. He slowly became more alert, wanted to leave, but he was still very much in danger of falling. I had to bring him back to the clinic in the afternoon, on the way back he slept in a taxi, could not walk alone the short way to the station, arrived there, he slept again, did not realize that I went home.
I asked again and again to reduce the psychotropic drugs, but this obviously did not happen, because in my daily visits, he slept mostly, as well as the other patients on the ward, in a chair in the day room, the last days I found him lying in bed, he was no longer able to get up or walk alone.
I had to give him to a nursing home on the advice of the doctors, where he still arrived completely sedated, did not want to eat and drink, took this only from me. Fresubin was prescribed, which he drank in my presence.The staff was also unable to serve him lunch, since there was complete understaffing, so I was every day for hours with my husband, have asked on cessation of psychotropic drugs, which was slowly tackled, a new doctor wanted to take care of he had been commissioned by the home. But there was still no contact with this.
On the 6th day of the home stay (Sunday) the nurse called me at noon that my husband did not want to eat and drink, that it was apathetic to call a doctor. I said yes and went straight to the home with my son. My husband lay in bed, barely able to breathe. Shortly thereafter, a doctor on call diagnosed pneumonia and ordered the ambulance to be taken to the hospital for immediate transport. On the way there, the condition of my husband worsened, the blood pressure, which was always very low during the inpatient hospital stay due to the medication, was now life-threatening, so that the blue light was switched on by the paramedics and on the way a doctor came on the way. We made it to the hospital, but they told me my husband was dying. He was given antibiotics, oxygen and morphine. He died in the night.
I know very well that the high dose of neuroleptics, benzodiazepines in combination with the diabetes, blood pressure and other medicines (a total of 13 drugs) caused his early death. It is curious that due to staff shortages in hospitals and homes, the patients are too lightly sedated. As a relative you do not have anything to do with it, you are dismissed as a medical layman. It is completely desperate because the doctors can not listen because of lack of time at all, the nurses can not adequately care for patients due to understaffing.
I will reproach myself until the end of my life that I have not fought more energetically for stopping the neuroleptics. It must be re-thought in our society, the dementia forms are increasing more, the existing reserves of those affected must be promoted more, they must let their agitation live out in special facilities, there must be more night care with shift of the day / night rhythm, so the relatives can recover at night to enable the patients to stay as long as possible in their home environment during the day with the help of care services and support in everyday life. Why do relatives who take care of themselves 24 hours a day receive less care allowance than an outpatient nursing service?
Stop finally with the Neuroleptikagabe, which causes only the early death of these poor people and thinks about the creation of other forms of living, for example. "Homes", which also take care of the caregiver, where at night it can sleep undisturbed, while under the same roof, the sick partner is cared for by nurses and can be together again with his healthy partner who helps him with the meal Toilet attendance, etc., can be present, can also help other fellow patients with, so there is practically a shared housing of the sick and healthy, so that the nurses need only support and give assistance. In our aging society, the increase in dementia is highly anticipated.
1 Thursday, March 5, 2015 at 1:20 pm
My husband has been told by doctor in September 2012 he has dementia.
On October 3, 2012 to the hospital for examination. Come out on 16.10.2012. They asked me if you want to take your husband home. Yes, yes. At home is at home.
On October 17, 2013, he is back in the hospital, but he has beaten in the day care center around. What they did not believe me. He set fire to it, threw furniture around, ran away, could no longer count, hit me, the worst was where he had shot with the knife.
Did not get him home then, he came from then to the home. From 9.11.2013 my husband is in home.
In December he was already diapered.
In January 2014, I already died with my husband. The caretakers also looked at where he said that. He was still walking around.
In May he fell out of bed with a hole in his head.
From September 2014 he is lying in bed and weighs only 61 kg.
The hands are stiff, you dare not touch him.
On 10.11.2014 I brought him near me.
Because that the disease has gone so fast with my husband, I still do not understand. Even if I have read a lot. It's a pain to see a human like that.